i just don't get why anyone would be like "whoa can't deal with that"
it's a neurological problem that most of the time the person who doesn't have it won't know it's there
like in this day and age only the biggest idiots are afraid to even be around somebody with all out aids
who finds out somebody has ms and their reaction is "can't even talk to this freak"
Yeah I didn't mean by my post that I think people should shun you for having MS or that it makes someone undateable.... I think it's misinformation. Like everyone has heard of MS if only in passing. I myself a until a few years ago when I looked it up (because i'm hypochondriac basically) thought that MS was a lot worse than it is.
Honestly ask most people what MS really is and I think they wouldn't really know that well. But it's something we hear the name a lot so it must be serious.
You would think having a child would be the main factor but it never really has been much of an issue.
I thought MS was like some serious shit.
This thread taught me something.
I'm terrible at wording things
The "you don't look sick" thing is probably major frustration for anyone with a purely neurological condition
I don't know much about it, but for some reason I just get this seriously bad vibe whenever I see those letters together. Like it's something you should say in a hushed tone
I was glad I didn't have full on ms
I got an MRI every year for a few more years and there was never any more scarring
P. Cool to have images of your own damn brain to look at and a cool weird scar to show off by holding your weird brain picture up to the light
Remember to say scar and not lesion because scars are cool and lesions are like uh oh you're patient zero
Damn I post too fuckin much
During all my panicking after the MRI when I was learning as much as I could about MS just in case I was having a lot of trouble deciding if I'd rather take the drug the weekly big ass injection or the more frequent one with smaller needles
can't remember their names
I decided definitely the bigger one but mostly because I couldn't be trusted to remember to do it more than one time a week. Very exciting when my neurologist told me "nah that's not ms but come back for check ups" since I'm mentally f'd up enough for disability and didn't need to wind up with a physical one if I want to go the government cheese route
i'm going to get fired for being completely unlikable
Can you get an online job?
Because you're pretty likeable online in a strange way.
What greatet evidence would someone need?
Not that I ever want another attack but it is kind of awkward now that when you just have one it is called a "CIS"
Does depression cause weight loss.
I can't stop losing weight. I'm 6'4 and I only way 165 right now. That can't be healthy.
I'm like a walking corpse.
I binge eat to self medicate my depression so obviously it is way in the other direction
But in other people there is decreased appetite
depression isn't a monolith diagnosis
I usually dont eat when Im sad. I'll go days without.
I almost passed out today. But idk, I've been eating at least one meal a day.
I think it's that I eat absolute shit.
Don't worry man, its probably just cancer.
Did i mention i was hypochondriac?
But i mean come on unexplained weight loss? Obviously cancer. I'd like to have your problem. I cant lose weight even if i try pretty hard. Fucking mid 30's.
Also the worst i feel the more i eat personally. And the less i get up to do anything at all. Bad combination.
Man I'm reading a ton of MS stuff again and I don't know
I think as much as I was reading at the time I must have selectively blocked out some of the shit because of fear
Like most all ppl w/ it wind up unable to walk
I sort of did not remember the stats being so high and had mostly remembered benign ms and relapse remitting and also completely flubbed that relapse remitting almost always eventually turns into the progressive kind
I should probably be better informed just because of the statistic likelihood that I will still get it since I had CIS but yolo
My one attack really sucked
Like i woke up and my left arm was totally numb
Just laying there all "well this is it, 22 years old and dying of a stroke"
Eventually getting up (not to get help or anything, but to go google stroke symptoms) and falling back on to the bed because I couldn't balance myself
and it was at this unmanageable level for a week
Like what the hell was I even talking about before
This would be a completely dogshit thing to have happen with the regularity of even the more benign forms of the disease
ok I really have to Adblock to reply button
"To google stroke symptoms"
That' awful and funny at the same time.
So I can't move this limb? Well that's an interesting development.
my dad has MS
he walks with a cane now
a bunch of terrible shit i don't want to go into
but he doesn't have to give himself shots anymore cause they just got these new pills he can take now
Aeris, I had no idea you were diagnosed. Did they do anything to treat it, or at this point, doesn't need treating?
My first symptom...in 2004, I was changing A's diaper and suddenly my vision blurred, never cleared up, and just continued going until I could barely see. My only symptoms I've ever had are optic neuritis and leg pains, sometimes my arms. I've been on copaxone for years... but now on gilenya, working miraculously, $4k a month. Thanks be to God for insurance. My out of pocket costs are $250.00 a month. If I even have one hint of blurred vision, I get an IV of steroids and it's gone pretty quickly. So, things are pretty well under control.
Pave, I know that depression can cause some weight loss, but pay attention to that. Whatever you do, don't google, or you'll be freaked out thinking it's something serious off the bat. I have done this, and many times, by the end of the night I'm sure I'm going to die from something.
Maybe it's a form of denial... avoidance, whatever you call it.. but not focusing on it so much actually helps me feel better.
Well no to be totally clear I don't actually have MS
I had a single demyelination attack in 2006
I've never had another, none of my subsequent MRIs have turned up anything
So it just doesn't fit the criteria, like the "multiple" part :|
At the time I told everyone I had it, I posted in the private club section of the board and told a bunch of close associates because I'm miserable and everything is doomsday but it was literally what happens to people with ms but after a couple years I stopped seeing my neurologist, but I am a devoted hypochondriac and it it is fairly likely that anyone who had an attack develops the full blown disease eventually but I mean 8 years feels safe to me
I did get checked out when I was diagnosed with my cataract in 2012 because even though that isn't specifically an MS symptom at all it freaked me out that I would have one at 28 but nothing, although I'm still bummed out by having part of my eye being fake now
It sucks when people are hypochondriac and actually have reasons to be. It makes me feel more pathetic because I don't really have reasons aside from a weak immune system.
once I had blood tests done and I shown positive for Hepatitis C and freaked the fuck out for the like 3 months (yeah no hurry or anything...) it took them to do more tests and tell me oh no you don't really oops false alarm. the thing is, that happened again some years later, exact same thing.
They believe I may (MAY) have had hepatitis C at some point. Little known fact is that a high % of people who ever get hepatitis C actually clear it within like weeks after which you might occasionally be showing antibodies for it in the blood or something which is what the basic test for Hepatitis C checks for (its when you don't clear it that it becomes chronic and then if you take medication for it and if they don't work, you're likely fucked and will get liver failure down the line some time).
On the other hand, while you can get it through unprotected sex, its extremely unlikely as it basically has to be blood to blood (and not just bodily fluids) contact, so not being exactly promiscuous and having never shot up, chances are unlikely I got it. (though one ex I had was promiscuous...even when we were together I found out eventually and the first time the blood shown wrong was right around this time. They didn't even tell me what was wrong with it at first too and I knew they were also checking for hiv so I freaked out about that too).
But you know...that's about the closest I got to having something bad... and then I didn't.
Though part of me right now is half convinced I have slow progressing intestinal cancer.
Can this become the hypochondriac thread?
Doesn't everyone have slow progressing cancer?
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