Ask Luke

[Shallowed]

I'm really sorry to hear how all this has turned out. It's admirable how well you seem to be holding up.

[pavementtune]

Originally Posted by Lucky Day Spa

point of this thread is to field questions, so please ask away.

mmm okay, let me try.

do you have a plan B, in case it gets unbearable. as in - active euthanasia.

[duovamp]

What's the most fun thing you've ever experienced?

Good luck, sir. I'll miss you deeply. If you leave.

[slunken]

have you ever heard of a dream fish?
https://en.wikipedia.org/wiki/Hallucinogenic_fish

Sarpa salpa was used as a recreational drug during the Roman Empire, and is known as "the fish that makes dreams" in Arabic.

[Shallowed]

What, if anything, do you most want to do before you die?

[hnibos]

Regular bacon or Canadien bacon?

[Eulogy]

What do you want right now? Other than a different diagnosis. (I am so sorry and I'm sorry if you're sick of hearing that.)

[Lucky Day Spa]

Originally Posted by Bread Regal

what is daily life like right now? are you suffering migraines or seizures due to the swelling? does knowing your prognosis make you anxious? depressed?

quite a lot of seizures and i've been in and out of hospital for thosebut we seem to have them under control for now – drug regimen has been the challenge there. no migraines. idea is i'll start on some chemo in a week and a bit to try and buy some more time, get the swelling down further

i'm not anxious or depressed. just trying to spend my time doing things that i think have a good shot at making me happy

[Lucky Day Spa]

Originally Posted by pavementtune

mmm okay, let me try.

do you have a plan B, in case it gets unbearable. as in - active euthanasia.

hospice is likeliest

euthanasia is not legal here http://www.nzherald.co.nz/nz/news/ar...ectid=11461278

[Lucky Day Spa]

Originally Posted by hnibos

Regular bacon or Canadien bacon?

regular

[Lucky Day Spa]

Originally Posted by Shallowed

What, if anything, do you most want to do before you die?

i'm hoping to take the train to auckland, something i've never done, but i need time to stabilise a bit more before they won't worry about me having a seizure en route

[Lucky Day Spa]

Originally Posted by slunken

have you ever heard of a dream fish?
https://en.wikipedia.org/wiki/Hallucinogenic_fish

nope

[Lucky Day Spa]

Originally Posted by duovamp

What's the most fun thing you've ever experienced?

Good luck, sir. I'll miss you deeply. If you leave.

perhaps playing in a tight,well-rehearsed band where the songs are strong and the personnel know their instruments

[Lucky Day Spa]

Originally Posted by Eulogy

What do you want right now? Other than a different diagnosis. (I am so sorry and I'm sorry if you're sick of hearing that.)

more time to do things

[Lucky Day Spa]

Originally Posted by sppunk

Want to name your own "IN HELL" thread? I mean, might as well ...

no, but thanks

[duovamp]

Originally Posted by Lucky Day Spa

perhaps playing in a tight,well-rehearsed band where the songs are strong and the personnel know their instruments

Mmm, that is a good feel.

[Trotskilicious]

did you feel sppunk's joke was inappropriate and completely insensitive?

[Trotskilicious]

Originally Posted by Lucky Day Spa

hospice is likeliest

i talk to people often about this, so often they refuse it or even more likely their fucking family refuses it so I'm glad you're considering it

did you get all your will stuff set up?

[duovamp]

Can we do anything for you? Like send cards or stuff? I think that'd be fun.

[Trotskilicious]

one of the things that cheeses me off is the fucking family meddling with the patient's diagnosis and refusing to quit or let go when they REALLY need to. the whole fight cancer never give up thing is important but a half-truth. sometimes the ticket is punched, and no chemo didn't kill them, shut the fuck up.

I had to talk to this woman for over an hour one time that didn't understand why they wouldn't give her 93 year old mother chemo for her breast cancer. I just couldn't even believe the selfishness masquerading as concern for the patient. i just couldn't really come out and say "she's 93! the chemo will kill her! she's 93! let go!" so i had to talk around it, suggest it, that kind of stuff. she tells me her mother is wheelchair bound and basically an invalid and has been for years. by the end of the call she was still "well they just want to give up and I won't let them. God will find a way." fuck you, lady.

you get really calloused at my job. of course you still have to cry about friends who are gonna go, I got news on friday that one of my friends at work has mesothelioma, he's 24.

life ain't fair and the world is mean

[Lucky Day Spa]

Originally Posted by Trotskilicious

did you feel sppunk's joke was inappropriate and completely insensitive?

somewhat

[Lucky Day Spa]

Originally Posted by Trotskilicious

i talk to people often about this, so often they refuse it or even more likely their fucking family refuses it so I'm glad you're considering it

did you get all your will stuff set up?

yeah, i'm sorted

[Bread Regal]

Yeah I have to say that playing with a good group of musicians is one of the best feelings ever.

[yo soy el mejor]

i don't play an instrument particularly well, but i reckon it's a similar feeling to when you're singing with someone and get to harmonizing.

[yo soy el mejor]

so when is your last day of work? have you given the farewell speech? any people you will miss more than most?

[Disco King]

What is your most cherished possession, and do you want anything specific done with it after you're gone, or do you not have that sort of sentimental attachment to things?

Was there ever a point where you were so frustrated with medicine's inability to cure your condition that you desperately turned to implausible things claiming to heal you, like alternative medicine or prayer?

[Shallowed]

Originally Posted by Lucky Day Spa

i'm hoping to take the train to auckland, something i've never done, but i need time to stabilise a bit more before they won't worry about me having a seizure en route

Do you know anyone here? Have you been here before? If so, what do you like to do in auckland?

[Lucky Day Spa]

Originally Posted by yo soy el mejor

so when is your last day of work? have you given the farewell speech? any people you will miss more than most?

no final date set. have been off work for a couple of months

lots of people i'll miss more than others, naturally

[Lucky Day Spa]

Originally Posted by Shallowed

Do you know anyone here? Have you been here before? If so, what do you like to do in auckland?

yes, many times

i like to go to restaurants, spend time with friends

[Lucky Day Spa]

Originally Posted by Disco King

What is your most cherished possession, and do you want anything specific done with it after you're gone, or do you not have that sort of sentimental attachment to things?

Was there ever a point where you were so frustrated with medicine's inability to cure your condition that you desperately turned to implausible things claiming to heal you, like alternative medicine or prayer?

i don't care about physical objects

i have no keepsakes

prayer/quack meds: never, not for a second