Netphoria Message Board


Go Back   Netphoria Message Board > Archives > General Chat Archive
Register Netphoria's Amazon.com Link Members List Mark Forums Read

 
 
Thread Tools Display Modes
Old 05-13-2014, 12:18 PM   #391
MusicMan4
 
Posts: n/a
Default

i just don't get why anyone would be like "whoa can't deal with that"
it's a neurological problem that most of the time the person who doesn't have it won't know it's there
like in this day and age only the biggest idiots are afraid to even be around somebody with all out aids
who finds out somebody has ms and their reaction is "can't even talk to this freak"

 
Old 05-13-2014, 12:29 PM   #392
The exploding boy
Minion of Satan
 
The exploding boy's Avatar
 
Location: "I'm a quivering collection of the worst and least helpful emotions: fear, anxiety, terror, paranoia, indigestion, dishpan hands..."
Posts: 7,765
Default

Yeah I didn't mean by my post that I think people should shun you for having MS or that it makes someone undateable.... I think it's misinformation. Like everyone has heard of MS if only in passing. I myself a until a few years ago when I looked it up (because i'm hypochondriac basically) thought that MS was a lot worse than it is.

Honestly ask most people what MS really is and I think they wouldn't really know that well. But it's something we hear the name a lot so it must be serious.

 
The exploding boy is offline
Old 05-13-2014, 10:27 PM   #393
Starla
*****
 
Starla's Avatar
 
Posts: 15,731
Default

Quote:
Originally Posted by Aeris Hilton View Post
i just don't get why anyone would be like "whoa can't deal with that"
it's a neurological problem that most of the time the person who doesn't have it won't know it's there
like in this day and age only the biggest idiots are afraid to even be around somebody with all out aids
who finds out somebody has ms and their reaction is "can't even talk to this freak"
I don't know... most people are usually surprised when they find out, and say "but you don't look sick". Maybe it's a matter of not wanting to feel burdened with someone who has health issues? Or get caught up in thinking they have to be someone's caretaker.

You would think having a child would be the main factor but it never really has been much of an issue.

 
Starla is offline
Old 05-13-2014, 11:39 PM   #394
Elphenor
Braindead
 
Elphenor's Avatar
 
Location: TX
Posts: 16,288
Default

I thought MS was like some serious shit.
This thread taught me something.

 
Elphenor is offline
Old 05-13-2014, 11:44 PM   #395
MusicMan4
 
Posts: n/a
Default

It is
I'm terrible at wording things
The "you don't look sick" thing is probably major frustration for anyone with a purely neurological condition

 
Old 05-13-2014, 11:51 PM   #396
Elphenor
Braindead
 
Elphenor's Avatar
 
Location: TX
Posts: 16,288
Default

I don't know much about it, but for some reason I just get this seriously bad vibe whenever I see those letters together. Like it's something you should say in a hushed tone

 
Elphenor is offline
Old 05-13-2014, 11:51 PM   #397
MusicMan4
 
Posts: n/a
Default

I was glad I didn't have full on ms
I got an MRI every year for a few more years and there was never any more scarring
P. Cool to have images of your own damn brain to look at and a cool weird scar to show off by holding your weird brain picture up to the light
Remember to say scar and not lesion because scars are cool and lesions are like uh oh you're patient zero

 
Old 05-13-2014, 11:55 PM   #398
MusicMan4
 
Posts: n/a
Default

Damn I post too fuckin much

Last edited by MusicMan4 : 05-14-2014 at 12:03 AM.

 
Old 05-14-2014, 12:02 AM   #399
MusicMan4
 
Posts: n/a
Default

During all my panicking after the MRI when I was learning as much as I could about MS just in case I was having a lot of trouble deciding if I'd rather take the drug the weekly big ass injection or the more frequent one with smaller needles
can't remember their names
I decided definitely the bigger one but mostly because I couldn't be trusted to remember to do it more than one time a week. Very exciting when my neurologist told me "nah that's not ms but come back for check ups" since I'm mentally f'd up enough for disability and didn't need to wind up with a physical one if I want to go the government cheese route

 
Old 05-14-2014, 12:08 AM   #400
Trotskilicious
Banned
 
Trotskilicious's Avatar
 
Location: I believe in the transcendental qualities of friendship.
Posts: 39,439
Default

i'm going to get fired for being completely unlikable

 
Trotskilicious is offline
Old 05-14-2014, 12:10 AM   #401
Elphenor
Braindead
 
Elphenor's Avatar
 
Location: TX
Posts: 16,288
Default

Can you get an online job?

Because you're pretty likeable online in a strange way.

 
Elphenor is offline
Old 05-14-2014, 12:12 AM   #402
Elphenor
Braindead
 
Elphenor's Avatar
 
Location: TX
Posts: 16,288
Default

Quote:
Originally Posted by pavementtune View Post
Honestly, MS is damn scary to me.

The big adult sister of a friend in kindergarten had the cruel form, so I got glimpse quite early.
wheel chair. A year later - her brain turned literally to mush.
On top of it, she gave birth to two kids when she was already in the wheel chair. Eventually they had to legally force her and took her kids away. She died before she was 30.

Lovely thread.
Yeah, there is no God

What greatet evidence would someone need?

 
Elphenor is offline
Old 05-14-2014, 12:36 AM   #403
MusicMan4
 
Posts: n/a
Default

Not that I ever want another attack but it is kind of awkward now that when you just have one it is called a "CIS"

 
Old 05-14-2014, 12:44 AM   #404
Elphenor
Braindead
 
Elphenor's Avatar
 
Location: TX
Posts: 16,288
Default

Does depression cause weight loss.

I can't stop losing weight. I'm 6'4 and I only way 165 right now. That can't be healthy.
I'm like a walking corpse.

 
Elphenor is offline
Old 05-14-2014, 12:49 AM   #405
MusicMan4
 
Posts: n/a
Default

Depends
I binge eat to self medicate my depression so obviously it is way in the other direction
But in other people there is decreased appetite

depression isn't a monolith diagnosis

 
Old 05-14-2014, 12:51 AM   #406
Elphenor
Braindead
 
Elphenor's Avatar
 
Location: TX
Posts: 16,288
Default

I usually dont eat when Im sad. I'll go days without.

I almost passed out today. But idk, I've been eating at least one meal a day.
I think it's that I eat absolute shit.

 
Elphenor is offline
Old 05-14-2014, 01:03 AM   #407
The exploding boy
Minion of Satan
 
The exploding boy's Avatar
 
Location: "I'm a quivering collection of the worst and least helpful emotions: fear, anxiety, terror, paranoia, indigestion, dishpan hands..."
Posts: 7,765
Default

Don't worry man, its probably just cancer.


Did i mention i was hypochondriac?


But i mean come on unexplained weight loss? Obviously cancer. I'd like to have your problem. I cant lose weight even if i try pretty hard. Fucking mid 30's.


Also the worst i feel the more i eat personally. And the less i get up to do anything at all. Bad combination.

 
The exploding boy is offline
Old 05-14-2014, 01:07 AM   #408
MusicMan4
 
Posts: n/a
Default

Man I'm reading a ton of MS stuff again and I don't know
I think as much as I was reading at the time I must have selectively blocked out some of the shit because of fear
Like most all ppl w/ it wind up unable to walk
I sort of did not remember the stats being so high and had mostly remembered benign ms and relapse remitting and also completely flubbed that relapse remitting almost always eventually turns into the progressive kind
I should probably be better informed just because of the statistic likelihood that I will still get it since I had CIS but yolo

 
Old 05-14-2014, 01:19 AM   #409
MusicMan4
 
Posts: n/a
Default

My one attack really sucked
Like i woke up and my left arm was totally numb
Just laying there all "well this is it, 22 years old and dying of a stroke"
Eventually getting up (not to get help or anything, but to go google stroke symptoms) and falling back on to the bed because I couldn't balance myself
and it was at this unmanageable level for a week

Like what the hell was I even talking about before
This would be a completely dogshit thing to have happen with the regularity of even the more benign forms of the disease

ok I really have to Adblock to reply button

 
Old 05-14-2014, 01:27 AM   #410
Elphenor
Braindead
 
Elphenor's Avatar
 
Location: TX
Posts: 16,288
Default

"To google stroke symptoms"
That' awful and funny at the same time.

So I can't move this limb? Well that's an interesting development.

 
Elphenor is offline
Old 05-14-2014, 04:39 AM   #411
null123
Minion of Satan
 
Location: bye
Posts: 7,266
Default

my dad has MS
he walks with a cane now
a bunch of terrible shit i don't want to go into
but he doesn't have to give himself shots anymore cause they just got these new pills he can take now

 
null123 is offline
Old 05-14-2014, 05:02 AM   #412
Cool As Ice Cream
Just Hook it to My Veins!
 
Cool As Ice Cream's Avatar
 
Location: František! How's the foot of your turtle?
Posts: 32,740
Default

Quote:
Originally Posted by Elphenor View Post
Does depression cause weight loss.

I can't stop losing weight. I'm 6'4 and I only way 165 right now. That can't be healthy.
I'm like a walking corpse.
Quote:
Originally Posted by Elphenor View Post
I usually dont eat when Im sad. I'll go days without.

I almost passed out today. But idk, I've been eating at least one meal a day.
I think it's that I eat absolute shit.
tss!

 
Cool As Ice Cream is offline
Old 05-14-2014, 08:10 AM   #413
Starla
*****
 
Starla's Avatar
 
Posts: 15,731
Default

Aeris, I had no idea you were diagnosed. Did they do anything to treat it, or at this point, doesn't need treating?

My first symptom...in 2004, I was changing A's diaper and suddenly my vision blurred, never cleared up, and just continued going until I could barely see. My only symptoms I've ever had are optic neuritis and leg pains, sometimes my arms. I've been on copaxone for years... but now on gilenya, working miraculously, $4k a month. Thanks be to God for insurance. My out of pocket costs are $250.00 a month. If I even have one hint of blurred vision, I get an IV of steroids and it's gone pretty quickly. So, things are pretty well under control.

Pave, I know that depression can cause some weight loss, but pay attention to that. Whatever you do, don't google, or you'll be freaked out thinking it's something serious off the bat. I have done this, and many times, by the end of the night I'm sure I'm going to die from something.

 
Starla is offline
Old 05-14-2014, 08:11 AM   #414
Starla
*****
 
Starla's Avatar
 
Posts: 15,731
Default

Quote:
Originally Posted by Charmbag View Post
my dad has MS
he walks with a cane now
a bunch of terrible shit i don't want to go into
but he doesn't have to give himself shots anymore cause they just got these new pills he can take now
Sorry to hear that.. yes, good thing they have pills now.

 
Starla is offline
Old 05-14-2014, 08:16 AM   #415
Starla
*****
 
Starla's Avatar
 
Posts: 15,731
Default

Quote:
Originally Posted by Aeris Hilton View Post
Man I'm reading a ton of MS stuff again and I don't know
I think as much as I was reading at the time I must have selectively blocked out some of the shit because of fear
Like most all ppl w/ it wind up unable to walk
You know, that's what I do. Sounds crazy but I just refuse to read too much about it. I don't want to join support groups, talk about it, or go to forums where people talk about it. I feel like, if I just keep my mind on other things and keep going.... keep working, and not put all my focus on it, I do so much better. The fear only creates this anxiety that takes away my happiness... and I refuse to let it do that.

Maybe it's a form of denial... avoidance, whatever you call it.. but not focusing on it so much actually helps me feel better.

 
Starla is offline
Old 05-14-2014, 01:48 PM   #416
MusicMan4
 
Posts: n/a
Default

Well no to be totally clear I don't actually have MS
I had a single demyelination attack in 2006
I've never had another, none of my subsequent MRIs have turned up anything
So it just doesn't fit the criteria, like the "multiple" part :|
At the time I told everyone I had it, I posted in the private club section of the board and told a bunch of close associates because I'm miserable and everything is doomsday but it was literally what happens to people with ms but after a couple years I stopped seeing my neurologist, but I am a devoted hypochondriac and it it is fairly likely that anyone who had an attack develops the full blown disease eventually but I mean 8 years feels safe to me
I did get checked out when I was diagnosed with my cataract in 2012 because even though that isn't specifically an MS symptom at all it freaked me out that I would have one at 28 but nothing, although I'm still bummed out by having part of my eye being fake now

 
Old 05-14-2014, 03:39 PM   #417
The exploding boy
Minion of Satan
 
The exploding boy's Avatar
 
Location: "I'm a quivering collection of the worst and least helpful emotions: fear, anxiety, terror, paranoia, indigestion, dishpan hands..."
Posts: 7,765
Default

It sucks when people are hypochondriac and actually have reasons to be. It makes me feel more pathetic because I don't really have reasons aside from a weak immune system.

once I had blood tests done and I shown positive for Hepatitis C and freaked the fuck out for the like 3 months (yeah no hurry or anything...) it took them to do more tests and tell me oh no you don't really oops false alarm. the thing is, that happened again some years later, exact same thing.

They believe I may (MAY) have had hepatitis C at some point. Little known fact is that a high % of people who ever get hepatitis C actually clear it within like weeks after which you might occasionally be showing antibodies for it in the blood or something which is what the basic test for Hepatitis C checks for (its when you don't clear it that it becomes chronic and then if you take medication for it and if they don't work, you're likely fucked and will get liver failure down the line some time).

On the other hand, while you can get it through unprotected sex, its extremely unlikely as it basically has to be blood to blood (and not just bodily fluids) contact, so not being exactly promiscuous and having never shot up, chances are unlikely I got it. (though one ex I had was promiscuous...even when we were together I found out eventually and the first time the blood shown wrong was right around this time. They didn't even tell me what was wrong with it at first too and I knew they were also checking for hiv so I freaked out about that too).

But you know...that's about the closest I got to having something bad... and then I didn't.

Though part of me right now is half convinced I have slow progressing intestinal cancer.

Can this become the hypochondriac thread?

 
The exploding boy is offline
Old 05-14-2014, 04:02 PM   #418
Elphenor
Braindead
 
Elphenor's Avatar
 
Location: TX
Posts: 16,288
Default

Doesn't everyone have slow progressing cancer?

 
Elphenor is offline
Old 05-14-2014, 06:06 PM   #419
The exploding boy
Minion of Satan
 
The exploding boy's Avatar
 
Location: "I'm a quivering collection of the worst and least helpful emotions: fear, anxiety, terror, paranoia, indigestion, dishpan hands..."
Posts: 7,765
Default

good point.

 
The exploding boy is offline
Old 05-14-2014, 06:10 PM   #420
I'm Hardcore
Banned
 
I'm Hardcore's Avatar
 
Location: so 1994 I could die
Posts: 15,964
Default

Quote:
Originally Posted by Elphenor View Post
Does depression cause weight loss.
yes, i'm down to 147 (67 kg) for the first time since age 16-17

 
I'm Hardcore is offline
 


Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is Off
HTML code is On
Google


Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Does anyone else have depression? rottenugly General Chat Archive 174 05-11-2014 11:36 PM
Poll: 60% say depression 'likely' Andrew_Pakula General Chat Archive 22 05-10-2014 01:18 AM
My depression is in full remission reprise85 General Chat Archive 37 04-04-2014 09:26 PM
McCain picks Sarah Palin as VP Tchocky General Chat Archive 997 06-09-2009 07:24 PM
how can you think the New Deal exacerbated the depression and at the same time think Debaser General Chat Archive 7 03-18-2009 06:01 PM


All times are GMT -4. The time now is 12:25 AM.




Smashing Pumpkins, Alternative Music
& General Discussion Message Board and Forums
www.netphoria.org - Copyright © 1998-2022