View Full Version : Does anyone have any cool diseases or conditions?


bardy
04-20-2009, 05:06 PM
Not mental ones--unless they are out of the ordinary.

Doesn't Eulogy have something that makes his butt leaky? Or was that someone else?

I have recently been diagnosed with Hashimoto's Disease but it isn't that exciting. It mostly just has a cool name.

sickbadthing
04-20-2009, 05:15 PM
ha eulogy has to wear a diaper

cork_soaker
04-20-2009, 05:46 PM
Doesn't Eulogy have something that makes his butt leaky?

gay sex joke

Nimrod's Son
04-20-2009, 05:47 PM
eulogy has a cyst i believe on his tailbone but it's been removed

Nimrod's Son
04-20-2009, 05:47 PM
btw there are a bunch of cool cyst popping videos on youtube

bardy
04-20-2009, 06:00 PM
I thuoght he had an actual disease that made him crap himself

sppunk
04-20-2009, 06:10 PM
I'm legally blind yet can see. Fuck all y'all.

Sonic Johnny
04-20-2009, 06:10 PM
i don't have a diagnosis for it but my whole life i've had this really crazy fast metabolism/strong immune system. I can eat and eat and eat and i never gain any weight, i rarely get sick but when i do it's like week-in-bed sick, and my body rejects all piercings i put into it. And i can sober up really quickly.

Caine Walker
04-20-2009, 06:12 PM
I thuoght he had an actual disease that made him crap himself

he most certainly does not.

TheMilstead
04-20-2009, 06:17 PM
i don't have a diagnosis for it but my whole life i've had this really crazy fast metabolism/strong immune system. I can eat and eat and eat and i never gain any weight, i rarely get sick but when i do it's like week-in-bed sick, and my body rejects all piercings i put into it. And i can sober up really quickly.

I have a friend that's exactly like that. We're all jealous of him.

I dunno, the only thing I can think of is my amazing superpower to almost immediately crap out any new food I try in diarrheal fashion. It's pretty great.

BumbleBeeMouth
04-20-2009, 06:23 PM
i have a condition where alcohol stops me from inhibiting adrenaline, so i sweat and get all tetchy. Doesnt stop me though, i errr take something to combat it.

Mo
04-20-2009, 06:24 PM
i don't have a diagnosis for it but my whole life i've had this really crazy fast metabolism/strong immune system. I can eat and eat and eat and i never gain any weight, i rarely get sick but when i do it's like week-in-bed sick, and my body rejects all piercings i put into it. And i can sober up really quickly.

I fucking hate you.

Mo
04-20-2009, 06:25 PM
Hooray, 15k.

pale blue eyes
04-20-2009, 06:28 PM
I dunno, the only thing I can think of is my amazing superpower to almost immediately crap out any new food I try in diarrheal fashion. It's pretty great.

I sometimes do this, too. I like trying new things but this always makes me think twice about it. Also, I have a few food allergies so I have to be careful.

As for disorders, some people find the Epilepsy thing interesting but I wouldn't call it cool and it's been pretty boring lately.

Mayfuck
04-20-2009, 07:04 PM
i dunno. is tuberculosis "cool?"

pale blue eyes
04-20-2009, 07:08 PM
TB is old school, so since nobody has those who do can drum up interest in it again thus making it cool again.

Eulogy
04-20-2009, 07:09 PM
I thuoght he had an actual disease that made him crap himself

holy fucking hell how does a cyst that was removed soon after it appeared turn into this?! i had it removed and they can't sew up that kind of wound so i had to wear pads for a while because blood was coming out of the wound for a while. BFD.

some other guy has crohn's disease, but i don't remember who. that can cause all sorts of bowel troubles.

Mayfuck
04-20-2009, 07:23 PM
voice implodes

cork_soaker
04-20-2009, 07:24 PM
crohn

neopryn
04-20-2009, 08:22 PM
i have the same thing as Eulogy, pilonidal cyst. i only got mine drained when it was infected so it's still there. i haven't had any issues since though.

it didn't leak either.

redbreegull
04-20-2009, 09:34 PM
I have photophobia (http://en.wikipedia.org/wiki/Photophobia). It was pretty bad when I was a kid, it has improved drastically over time.

YSEM
04-20-2009, 09:41 PM
i am a recovering alcoholic. i numb the pain with heroin.

SlingeroGuitaro
04-20-2009, 09:52 PM
you also post too much

barden
04-20-2009, 10:48 PM
AIDS.

Trotskilicious
04-20-2009, 10:58 PM
i dunno. is tuberculosis "cool?"

totally dude

doc holliday had TB they called it consumption

myosis
04-20-2009, 11:10 PM
I have recently been diagnosed with Hashimoto's Disease but it isn't that exciting. It mostly just has a cool name.
does this makes you gain weight, or maybe just make your chest bigger since you store all the fat there?

Rickpat12
04-20-2009, 11:44 PM
diabetes :(

hnibos
04-21-2009, 12:18 AM
keratoconus

murgle
04-21-2009, 12:23 AM
I'm hypoglycemic. Not really fun, except I pass out sometimes. Hasn't happened in over a year though. Yay!

DudeGuru
04-21-2009, 12:32 AM
I've got Crohn's does that qualify?

ryan patrick
04-21-2009, 01:06 AM
nothing but an arrhythmia that pops up once in a while. it isn't very cool. what's a cool disease like a deformity that gives you stunna shades?

ryan patrick
04-21-2009, 01:11 AM
google is logging all of your health conditions

ryan patrick
04-21-2009, 01:13 AM
you know right now your DNA is effectively public property because you shed it into the environment and google is going to sequence your DNA and then match it to this thread and make millions and finally the people that run it will be rich

Sarcastic Smile
04-21-2009, 01:47 AM
I was in a wheelchair on and off when I was little because my joints stopped working... the doctors never really figured out what it was.. they called it streptococcus for joints in the end .. I googled it and it's around but not as bad as i had it and not for as long... It happened from like kindergarden to about age 12 was my last episode.. It would happen in my arms as well... I wrote an essay about it for school that's in my desk somewhere

reprise85
04-21-2009, 02:58 AM
post traumatic stress disorder, is that an out of the ordinary enough mental condition?

also, dissociative identity disorder. kind of hoping i don't regret posting that one.

Trotskilicious
04-21-2009, 03:00 AM
i have a high risk of geriatric profanity disorder

Voice Implodes
04-21-2009, 03:14 AM
i check this place out for the first time in gof knows how long, and i see my name mentioned! im flattered you guys STILL talk about me (lol jk)

yes i have crohns disease which is in remission. i am actually in the best health of my life. amazing considering my lifestyle these days with touring and such. living the life baby!

28if
04-21-2009, 07:44 AM
post traumatic stress disorder, is that an out of the ordinary enough mental condition?

also, dissociative identity disorder. kind of hoping i don't regret posting that one.

Tell me more about your dissocociative identity disorder. I didn't know people that had that were even really functional.

I don't have any weird medical conditions. I keep getting tonsilitis but those fuckers refuse to take them out.

I'm Hardcore
04-21-2009, 07:47 AM
http://farm3.static.flickr.com/2079/2290870405_e7b40e62b8.jpg?v=0

Cool As Ice Cream
04-21-2009, 08:59 AM
DID diagnoses appear to be almost entirely confined to the North American continent, adding to the possibility that DID may not be a legitimate diagnosis.
Dissociative identity disorder - Wikipedia, the free encyclopedia (http://en.wikipedia.org/wiki/Dissociative_identity_disorder)

The Jesus
04-21-2009, 09:19 AM
I have this condition that causes me to fall off cliffs regularly.

Mo
04-21-2009, 09:27 AM
crohn

So, how's that working out for you?
I'm not yet diagnosed, but my doctor told me I probably have it. Fucking A. :|

bardy
04-21-2009, 10:29 AM
does this makes you gain weight, or maybe just make your chest bigger since you store all the fat there?

I think the chest thing is just inherited but yeah it makes you gain weight and makes it almost IMPOSSIBLE to lose. It also makes you incredibly tired and does bad things to your skin and bowels. It also diminishes sex drive. I've tested positive for the antibodies against my thyroid but I'm so borderline with my hormone amounts and inconsistent from one test to another that my doctor doesn't want to treat me yet... which kind of sucks because I'll have random days where I can't get out of bed I'm so tired. But then other days I'm perfectly fine. I wish my thyroid would just give up already or my body would quit attacking it.

publius clodius
04-21-2009, 11:01 AM
i'm pretty healthy for being sick all the time

publius clodius
04-21-2009, 11:02 AM
oh and when i was younger i actually chewed on my fingers so bad that they bled sometimes

it's still visible today kinda

KrazeeStacee
04-21-2009, 02:02 PM
Pot disease. Watch out.

silent1
04-21-2009, 02:09 PM
Pot disease. Watch out.

:rofl:

i have herpes

beef curtains
04-21-2009, 04:55 PM
hey bardy - how were you diagnosed with hashimotos??
My family has thyroid problems, autoimmune problems, and now my sister has had 2 thyroid levels drawn that varied widely. They are thinking it may be hashimotos. Did you just have a series of thyroid levels drawn?

noyen
04-21-2009, 05:04 PM
my brother had crohns and died from it.

i have ulcers, a b-12 deficiency (some other anemia problems, mostly related to diet, but i have to inject b-12 every 2 weeks for the rest of my life probably), and get the kind of migraines that kill baby seals frequently. i have gall stones that don't need to be removed yet. my dad has them too.
and i'm allergic to pretty much all raw fruits and vegetables. cooked, they're generally fine.

xtal
04-21-2009, 05:44 PM
i get colds and the flu alot but that's it

Mo
04-21-2009, 05:46 PM
my brother had crohns and died from it.

Wait, what?
Is that possible? I mean, it's an autoimmune disease. What happened?

:/

Voice Implodes
04-21-2009, 06:59 PM
Wait, what?
Is that possible? I mean, it's an autoimmune disease. What happened?

:/

many complications can arise. such as intestinal blockages from scar tissue to malnourishment.

publius clodius
04-21-2009, 07:08 PM
^sarcastic mr. know-it-all

myosis
04-21-2009, 07:34 PM
i have this cool condition that makes me burp for several minutes at a time

myosis
04-21-2009, 07:35 PM
also have LPR, GERD and TMD.
i love acronyms

wHATcOLOR
04-21-2009, 07:46 PM
myosis sounds like a skin condition

bardy
04-21-2009, 08:01 PM
hey bardy - how were you diagnosed with hashimotos??
My family has thyroid problems, autoimmune problems, and now my sister has had 2 thyroid levels drawn that varied widely. They are thinking it may be hashimotos. Did you just have a series of thyroid levels drawn?

well I have a family history of thyroid problems too (mom's stopped working completely) so I've been checked on a regular basis since I was in highschool. When I moved out here I waited way too long to find a doctor but once I did he insisted I get the whole blood panel done.... it showed my TSH (thyroid stimulating hormone) was higher than average but my actual hormones were in the normal range... (i.e. body is working harder to produce a normal amount of hormones) he didn't want to preemptively treat me so I waited 6 months and got the blood panel done again but this time they checked for a thyroid antibody. I tested positive for the thyroid antibody (it probably has a real name) which is what they use to diagnose hashimotos. my TSH was still a bit high but my hormones were still sort of in normal range, so it's just a waiting game to see when my hormone levels start to suffer because my thyroid is becoming ineffective. basically I'll get blood drawn every 4-6 months to check my hormone levels until he feels I need to start taking hormone supplements.

noyen
04-21-2009, 08:04 PM
many complications can arise. such as intestinal blockages from scar tissue to malnourishment.

yeah. he had surgeries, a colostomy bag, and a heroin addiction as well. that and a heaping dose of depression and mental illness, so it wasn't just crohns, but it sure fucked him up. sounds like things are more known about it now, and how to treat it.

myosis
04-21-2009, 08:04 PM
myosis sounds like a skin condition
it's actually an eye condition, so you're not far off.
myo- means muscle

bardy
04-21-2009, 08:09 PM
I have a few friends who have celiac's disease which is kind of "Cool" I guess.... if you don't like wheat

<sp3
04-21-2009, 09:30 PM
i suffered from sudden sensorineural hearing loss in 2005. my left ear spontaneously stopped working for no reason one day and never came back. it just turned off in a moments time, like a light switch. its the most fucked up thing that has ever happened to me.

barden
04-21-2009, 11:08 PM
post traumatic stress disorder, is that an out of the ordinary enough mental condition?

also, dissociative identity disorder. kind of hoping i don't regret posting that one.

what was the traumatic event?

wHATcOLOR
04-21-2009, 11:14 PM
it's actually an eye condition, so you're not far off.
myo- means muscle

who gives a shit

barden
04-21-2009, 11:15 PM
many complications can arise. such as intestinal blockages from scar tissue to malnourishment.

thats some scar tissue that i wish i'd saw!

reprise85
04-21-2009, 11:18 PM
Dissociative identity disorder - Wikipedia, the free encyclopedia (http://en.wikipedia.org/wiki/Dissociative_identity_disorder)

Sure, there's some controversy about DID. There are some sensationalist stories about people faking DID to plead for trials and such, so I can understand how one could be skeptical.

It wouldn't be in the DSM if there wasn't an overwhelming consensus that it is legitimate. Bottom line, I have and will have to live with it my entire life. There is a small fringe of people who believe it to be fake, based on a minute quantity of people who fake symptoms.

barden
04-21-2009, 11:20 PM
do some people not have the will to live with it their entire life?

barden
04-21-2009, 11:21 PM
reprise85 has anyone else ever posted under your account on netphoria?

reprise85
04-21-2009, 11:25 PM
what was the traumatic event?

The most consistent event involved kidnapping for several years. Sorry I'm not going to go into much more detail than that.

28if, treatment for DID can be very successful, but it is a long process. Right now, for me, it mostly includes the core symptoms of PTSD, plus 'losing time' (shift ego states, alters, or whatever you want to call them) and not having any recollection of the last X amount of time. People occasionally come up to me and know me as an alter, and I have no idea who they are at all. I have clothes in my closet I have no recollection of buying. Stuff like that. Even when I am not in an alter state, I usually have symptoms of other dissociative disorders - derealization, depersonalization, etc.

Some days are bad, some days are not at all. Yes, it is hard to function.

barden
04-21-2009, 11:27 PM
lol, wtf?
i dont think you can say that and not go into more details!!!!!!!!11

barden
04-21-2009, 11:27 PM
ARE YOU FROM AUSTRIA????????

reprise85
04-21-2009, 11:28 PM
I'm not sure, barden. Probably.

edit: I'm not from Austria, I meant the other people posting on my account thing.

barden
04-21-2009, 11:28 PM
WHERE DO YOU ALTERS KEEP THEIR MEMORIES? BRING THEM OUT TO PLAY, WE'LL MAKE A POLL ON NETPHORIA AND DECIDE WHICH ONE GETS TO STAY! I DONT THINK ITS FAIR THAT YOU'VE MADE THIS DECISION BECAUSE WELL IT SEEMS KINDA BIASED!

reprise85
04-21-2009, 11:30 PM
haha

more than likely if one of them wanted to post on netphoria, they would make their own account. i think.

pale blue eyes
04-21-2009, 11:31 PM
There have been studies on legitimate patients with DID and when they switch personalities a whole host of physiological changes take place - heart rate changes, different EEG brainwave patterns, etc. Sure, it is one of the most infamous disorders, but people really do have it.

barden
04-21-2009, 11:35 PM
haha

more than likely if one of them wanted to post on netphoria, they would make their own account. i think.

would you even know?
this is awesome.
can the mods please do an ip check and compare it to any other accounts?

reprise85
04-21-2009, 11:35 PM
Indeed, I haven't studied much (read: any) on brainwave patterns, but I know that between alter states, different parts of the brain that are active based on hearing autobiographical and non-autobiographical information respond based on if it's in that personality's "memory banks", so to speak.

I do know I have some alters that are left handed and also some who don't wear glasses.

barden
04-21-2009, 11:36 PM
ps, more on the kidnapping pls?
was it family or otherwise?
stockholm syndrome much?

pale blue eyes
04-21-2009, 11:36 PM
Now that I am thinking about it again, I do remember reading a couple of studies on PSTD and DID somehow being connected. A single personality splits off into two or three other ones, and a lot of the time there is a very angry, violent one that tries to protect the others against something traumatic happening to them again. I am a bit rusty on the stuff unfortunately and I'll just shut up now.

reprise85
04-21-2009, 11:38 PM
would you even know?
this is awesome.
can the mods please do an ip check and compare it to any other accounts?

Glad it's entertaining to you :cry:

barden
04-21-2009, 11:40 PM
i'm pretty aggresive when i lose my temper, and i'm pretty sure i bred that instinct through necessity growing up in weird situations, and sometimes I feel like that aspect of me did protect myself. But it would be weird to have a complete seperate entity to take care of it.

I have so many questions but i'll probably sound like a dick so i'll shut up

reprise85
04-21-2009, 11:42 PM
Now that I am thinking about it again, I do remember reading a couple of studies on PSTD and DID somehow being connected. A single personality splits off into two or three other ones, and a lot of the time there is a very angry, violent one that tries to protect the others against something traumatic happening to them again. I am a bit rusty on the stuff unfortunately and I'll just shut up now.

It's pretty much impossible to have DID and not, at least at some point in your life, have PTSD. DID is caused by severe, repetitive trauma under the age where children stop engaging in "magical thinking" (about 5-7). Alters can have many different functions, whether they be practical (the worker, the musician, the student), or kind of emotional outsourcing (anger, sadness), or things like self-harming and drug abuse. I know that's just scratching the surface, but just for reference.

barden
04-21-2009, 11:43 PM
so how did you get into the smashing pumpkins then?

reprise85
04-21-2009, 11:45 PM
i'm pretty aggresive when i lose my temper, and i'm pretty sure i bred that instinct through necessity growing up in weird situations, and sometimes I feel like that aspect of me did protect myself. But it would be weird to have a complete seperate entity to take care of it.

I have so many questions but i'll probably sound like a dick so i'll shut up

You have the idea, though. I can also be what they call "co-conscious" with an alter - they are in control, I can't control what we are doing, but I have some awareness of it. There is a continuum of dissociation with that being near the end, right before DID. If you've ever been so angry you felt like you couldn't control yourself, you could kind of compare it that, except that I would actually have no control. But usually I lose awareness completely if I "switch" - not much consciousness, that's one of the major goals of therapy.

As for the PTSD thing, it wasn't a family member, and there was much Stockholm Syndrome to be had.

reprise85
04-21-2009, 11:47 PM
so how did you get into the smashing pumpkins then?

just like probably everyone on the board? I heard BWBW (insert song here) and it appealed to my angst-ridden self that was taking care of business (so to speak) at the time

reprise86
04-21-2009, 11:49 PM
hello.

reprise85
04-21-2009, 11:49 PM
oh god

reprise85
04-21-2009, 11:50 PM
also, just to clarify... I didn't get kidnapped under the age of 7, it was in my teens. I had already devolped DID by that point and that just added a bunch of shit to the shitpile

reprise85
04-21-2009, 11:51 PM
let's talk about other people's cool diseases now, m'kay

reprise86
04-21-2009, 11:52 PM
back up, other people deserve a chance too you know.

barden
04-21-2009, 11:55 PM
You have the idea, though. I can also be what they call "co-conscious" with an alter - they are in control, I can't control what we are doing, but I have some awareness of it. There is a continuum of dissociation with that being near the end, right before DID. If you've ever been so angry you felt like you couldn't control yourself, you could kind of compare it that, except that I would actually have no control. But usually I lose awareness completely if I "switch" - not much consciousness, that's one of the major goals of therapy.

As for the PTSD thing, it wasn't a family member, and there was much Stockholm Syndrome to be had.

i have often felt angry beyond my control, as if stepping back and watching instead of doing. It has got me into some pretty shit and regretful situations.

28if
04-21-2009, 11:57 PM
I'm calling major shenanigans.

reprise85 wins thread though.

28if
04-21-2009, 11:58 PM
So do you have like three different screennames that you post under? Guys what if reprise85 really is like half the board? What if Netphoria is her littlle play-world?

barden
04-21-2009, 11:59 PM
what if YOU are reprise85, 28if!!!!

reprise85
04-21-2009, 11:59 PM
Yep, that's a form of dissociation - "Out of Body" - which is common in times of stress or extreme emotion. If it happened to you all the time, you might be considered to have a dissociative disorder of some kind, but actually I think you'd have to be one step up from that (derealization and/or depersonalization).

reprise85
04-22-2009, 12:00 AM
So do you have like three different screennames that you post under? Guys what if reprise85 really is like half the board? What if Netphoria is her littlle play-world?

I doubt I post under multiple screen names, and I'm being totally honest about my condition in this thread.

reprise86
04-22-2009, 12:03 AM
hey dudes i gots some post tramutic stress.
keen kidnapped a coupla times and still feel somehow caged.
a bit of the old DID, disassocative identity disorder to those who dont know.

reprise86
04-22-2009, 12:03 AM
dont know if it qualifies me for out of teh ordinary mental condition?

reprise85
04-22-2009, 12:04 AM
Yep, and here's where I regret being honest about anything on this board.

reprise86
04-22-2009, 12:05 AM
this is a revolution.

reprise86
04-22-2009, 12:05 AM
i want more spotlight. my time has come.

reprise87
04-22-2009, 12:10 AM
WASSUP??

Mo
04-22-2009, 12:11 AM
Me and my other identities wish Barden would just shut the fuck.

bardy
04-22-2009, 12:13 AM
up

bardy
04-22-2009, 12:14 AM
but seriously, how cool is reprise85? I don't understand how you know which of your personalities is the "real" one... you know? I guess except for other people telling you who you are most often.

How does the glasses thing work? You must not have that bad of vision?

I have read a book about someone with mutiple personalities. I think it's a pretty commonly known book but I don't remember the name :(

reprise85
04-22-2009, 12:14 AM
4 realz

reprise87
04-22-2009, 12:18 AM
check it out 85, 86, we're pretty cool nice work!
mental hi 5!

reprise85
04-22-2009, 12:19 AM
but seriously, how cool is reprise85? I don't understand how you know which of your personalities is the "real" one... you know? I guess except for other people telling you who you are most often.

How does the glasses thing work? You must not have that bad of vision?

I have read a book about someone with mutiple personalities. I think it's a pretty commonly known book but I don't remember the name :(

There is no "real" personality. I'm just the one out most often. When the other ones are out, they are the "real" personality. It's like a puzzle, put them all together it's one person. As separate personalities, we are one dimensional, including the "me" who is posting right now.

My vision is moderately fucked up. I just know because I'll "come back" and be driving or reading or doing anything (I need my glasses for everything) and not have my glasses on. Sometimes fun is had for hours trying to find them. But usually they are close-by.

Just how it is for now.

bardy
04-22-2009, 12:20 AM
where do you live, out of curiosity? how do your friends handle this?

reprise87
04-22-2009, 12:22 AM
yeah, personally my eyes are pretty decent and i like to play games with 85 and hide the specs when it's my turn.
sometimes when i read the first half of a chapter and then someone else takes over, i'll make little notes cause although i'm one dimensional i like to think i'm courteous too.
I cant say the same for everyone in the circle though.

reprise87
04-22-2009, 12:22 AM
we dont have all the same friends.
closer ones know.


dating is where it gets complicated!

bardy
04-22-2009, 12:26 AM
god shut up barden, someone ban him

barden
04-22-2009, 12:31 AM
hey f u you name stealer!

reprise85
04-22-2009, 12:35 AM
where do you live, out of curiosity? how do your friends handle this?

I live in Florida. I only really have two or three good friends. They have relationships with my main alters separately, but in general just work to get "Erica" back by asking for me. They tell me it's generally not that hard to do, unless I'm having a flashback or something, or if I switch into a child alter that's afraid of them. I guess they're just good caring people that go with the flow mainly. People I know as acquaintances generally just get confused and I don't even correct them if they call me another name.

reprise85
04-22-2009, 12:38 AM
Basically if they alter isn't bothering anyone or being inappropriate, they just let them be.

barden
04-22-2009, 12:39 AM
what are some of the names you've been called, or know of?

reprise85
04-22-2009, 12:41 AM
barden, I doubt the sincerity of your interest and also I don't think I'd answer that anyway

28if
04-22-2009, 12:43 AM
how often does it change

barden
04-22-2009, 12:43 AM
i'm kinda sincere.
okay, dont get into specifics.
how many names are you aware of, as in a number?

reprise85
04-22-2009, 12:45 AM
about 15

28if, it depends. could be once a day. could be 20 times.

barden
04-22-2009, 12:50 AM
i dont think i have 15 email addresses!

reprise85
04-22-2009, 12:52 AM
good thing all of them don't know how to use the internets ;)

Mo
04-22-2009, 02:11 AM
Don't you ever have recollections of what just happened? Do you sometimes post here as an alter? Are you most likely to do stuff as an alter you wouldn't normally do?

BTW - It is now official that I have Crohn's Disease. Fucking bummer.
But hey, you never forget your first autoimmune disease diagnose, amiright?

Voice Implodes
04-22-2009, 02:47 AM
yeah. he had surgeries, a colostomy bag, and a heroin addiction as well. that and a heaping dose of depression and mental illness, so it wasn't just crohns, but it sure fucked him up. sounds like things are more known about it now, and how to treat it.


true there have been advances but there is still no cure or surefire treatment. i just have sometign that works for me. unfortunately it can lead to other things and vice versa in trying to deal with the pain. i know another guy with it who does not handle it well at all. depends on the person.

im sorry to hear about that though. :(

Cool As Ice Cream
04-22-2009, 02:58 AM
As for the PTSD thing, it wasn't a family member, and there was much Stockholm Syndrome to be had.
also, just to clarify... I didn't get kidnapped under the age of 7, it was in my teens. I had already devolped DID by that point and that just added a bunch of shit to the shitpile
so how did you get into the smashing pumpkins then?
reprise85 was kidnapped by billy corgan.

Mo
04-22-2009, 02:59 AM
true there have been advances but there is still no cure or surefire treatment. i just have sometign that works for me.

And what's that?

Mo
04-22-2009, 03:03 AM
reprise85 was kidnapped by billy corgan.

Maybe that's just the online voyeur in me talking, but I'd be really interested in reprise85's story :/

Mo
04-22-2009, 05:58 AM
BTW - It is now official that I have Crohn's Disease. Fucking bummer.
But hey, you never forget your first autoimmune disease diagnose, amiright?

Awesome. I just talked to my doctor again, and it turns out that I should give up coffee and cigarettes. The two things in life that keep me going.

Also: no more hot spices, fries, olives, mold cheese... I better kill myself right now.

Cool As Ice Cream
04-22-2009, 06:13 AM
Farewell! Bon voyage.

cork_soaker
04-22-2009, 06:30 AM
I just talked to my doctor again, and it turns out that I should give up coffee and cigarettes.

i would get a second opinion on this

pale blue eyes
04-22-2009, 06:36 AM
It's pretty much impossible to have DID and not, at least at some point in your life, have PTSD.

Not everybody who lives through a trauma suffers from PTSD and from what I remember, there's not a huge correlation between people who have been diagnosed with both. It's just one of those things in which so many factors come into play that one person could develop DID and another could just have a bit of a fucked up past. I know the length of the trauma is a big one but DID is a disorder with a very high rate of comorbidity. There is usually a whole bunch of other stuff already going on - addiction or mood disorders, before a DID diagnosis. Anyway, I'll just wish you the best of luck and promise to shut up now. :)

Mo
04-22-2009, 06:51 AM
i would get a second opinion on this

Definitely.

hnibos
04-22-2009, 12:21 PM
Don't you ever have recollections of what just happened? Do you sometimes post here as an alter? Are you most likely to do stuff as an alter you wouldn't normally do?

BTW - It is now official that I have Crohn's Disease. Fucking bummer.
But hey, you never forget your first autoimmune disease diagnose, amiright?

since she divulged this, i dont think she will be mad at me for mentioning this, but, I have spoken to an alter of hers.



(hey thanks reprise im doing better btw)

Eulogy
04-22-2009, 12:32 PM
Awesome. I just talked to my doctor again, and it turns out that I should give up coffee and cigarettes. The two things in life that keep me going.

Also: no more hot spices, fries, olives, mold cheese... I better kill myself right now.

holy shit, i'm sorry. :( good luck.

reprise85
04-22-2009, 02:24 PM
Not everybody who lives through a trauma suffers from PTSD and from what I remember, there's not a huge correlation between people who have been diagnosed with both. It's just one of those things in which so many factors come into play that one person could develop DID and another could just have a bit of a fucked up past. I know the length of the trauma is a big one but DID is a disorder with a very high rate of comorbidity. There is usually a whole bunch of other stuff already going on - addiction or mood disorders, before a DID diagnosis. Anyway, I'll just wish you the best of luck and promise to shut up now. :)

I agree - I have had addiction problems and am diagnosed with Major Depressive Disorder as well. Pretty much everyone I know with DID (through treatment) has a mood disorder and either drug/alcohol problems or eating disorders (or both).

I guess it's just my experience that everyone I've ever met with DID also has PTSD, but that's probably cause I was in a PTSD program with a small rate of patients who also have DID ;) dur

reprise85
04-22-2009, 02:26 PM
Awesome. I just talked to my doctor again, and it turns out that I should give up coffee and cigarettes. The two things in life that keep me going.

Also: no more hot spices, fries, olives, mold cheese... I better kill myself right now.

Dude, I'm sorry. :(
I have a friend with it and with the right meds he's pretty normal, but he does have to do an IV med flush once a month, and eat a pill (levison I think) before he eats anything.

reprise85
04-22-2009, 02:37 PM
Don't you ever have recollections of what just happened? Do you sometimes post here as an alter? Are you most likely to do stuff as an alter you wouldn't normally do?


I can have conversations with alters and find out what just happened, and I do sometimes have flashes of memory from when an alter was out.
I don't know if I've ever posted as an alter, but it's probably happened. I don't think it happens all the time though, as far as I know. I could be wrong.
I am way more likely to do stuff I wouldn't do if an alter is out. As an example, one of my alters confronted two of my abusers (who still live together - not the kidnapping stuff), which I would never have the guts to do, or would think was a good idea. Also if I'm around kids I'm likely to switch into one of my kids, which can be pretty damn embarrassing if I'm told about it.

As far as the story of being kidnapped - I'll keep it short. I met a dude online when I was 14 (he was 19) who proceeded to meet with me a few times, and we became "boyfriend and girlfriend". He moved to FL and then convinced me to basically run away with him to Louisiana. Things changed very fast. Not going to go into detail but he's definitely a sexual predator and I was old for him to be interested in, even at 14. I was there until I was 19, from May 2000 to August 2004. I didn't even talk about what happened - at all - until around February 2008. Yes my parents knew where I was but I was forced to keep up that everything was great on the phone, and the couple times they visited. They didn't know what was going on. The end.


(glad you're doing better hnibos - sorry for the triple post everyone)

Mo
04-22-2009, 02:44 PM
Holy shit, girl, I honestly don't know what to say... You obviously gotta deal with a lot of stuff. Yet you seem remarkably normal around here.

/One more thing - did they get him for that?

waltermcphilp
04-22-2009, 02:46 PM
so it's like fight club?

Mo
04-22-2009, 02:47 PM
Yeah, I don't get that talking to an alter part either.

bardy
04-22-2009, 03:01 PM
do you hear them inside your head sometimse? is that how you talk?

I think you are one of the most interesting people I've "talked' to in a long timE!

reprise85
04-22-2009, 03:20 PM
He is "under investigation" for producing child pornography - I'm not trying to get him in trouble for what he did to me, but I did give the FBI a lot of info on the activities he's involved with both online and off, plus general info about him and his habits. I actually talked to the FBI again about 2 weeks ago, they called to get some more info. I've talked to the same special agent for probably about 4-5 hours total about him, mostly in Feb 2008.

I haven't seen fight club all the way through so I can't tell you, but yes it's like I talk to them in my head, but it's not like schizophrenia... I know they are me, I know they are alters... a lot of times they just pop in my head for a second if something is bothering them or whatever, sometimes it gets crazy and a bunch of them are talking at once, or talking to each other and not me. Yeah that must sound pretty crazy.

Mo
04-22-2009, 03:21 PM
This might be too personal, but why won't you give him any trouble? That asshole practically stole five years of your life..

reprise85
04-22-2009, 03:24 PM
It would be very hard to deal with for me, I'm sure the defense or whatever would label me a crazy because of my "condition" - I don't want him stealing any more time from my life, ya know? Plus it would be the ultimate betrayal, it would just be hard for me to do - it would start a lot of chaos within.

It would be really satisfying though if/when he does get picked up.

Mo
04-22-2009, 03:27 PM
Defense lawyers are assholes. Can't you just tape a video message for the jurors to see?

Anyway, good luck helping the FBI.

waltermcphilp
04-22-2009, 03:29 PM
reprise85, you are a nice gal and i am sorry the world is so shitty.

also, how has the music biz been lately?

bardy
04-22-2009, 03:29 PM
He is "under investigation" for producing child pornography - I'm not trying to get him in trouble for what he did to me, but I did give the FBI a lot of info on the activities he's involved with both online and off, plus general info about him and his habits. I actually talked to the FBI again about 2 weeks ago, they called to get some more info. I've talked to the same special agent for probably about 4-5 hours total about him, mostly in Feb 2008.

I haven't seen fight club all the way through so I can't tell you, but yes it's like I talk to them in my head, but it's not like schizophrenia... I know they are me, I know they are alters... a lot of times they just pop in my head for a second if something is bothering them or whatever, sometimes it gets crazy and a bunch of them are talking at once, or talking to each other and not me. Yeah that must sound pretty crazy.

I actually sort of know what you are takling about, but only because I read this book:

Amazon.com: First Person Plural: My Life as a Multiple: Ph.d., Cameron West: Books (http://www.amazon.com/First-Person-Plural-Life-Multiple/dp/0786889780/ref=sr_1_27?ie=UTF8&s=books&qid=1240432085&sr=8-27)

it was really interesting. You should write your own book!!

What do you do for a living? Or what did you study in school?

reprise85
04-22-2009, 03:31 PM
I really don't know. But thanks. They can find enough evidence to put him away for life or possibly even the death penalty, not sure on the laws in that state, not that I would agree with putting him to death. I also imagine he lives in his own private hell, having to watch his back constantly and having an addiction eating him up. Yeah, that's not enough punishment but at least it' something.

reprise85
04-22-2009, 03:35 PM
I actually sort of know what you are takling about, but only because I read this book:

Amazon.com: First Person Plural: My Life as a Multiple: Ph.d., Cameron West: Books (http://www.amazon.com/First-Person-Plural-Life-Multiple/dp/0786889780/ref=sr_1_27?ie=UTF8&s=books&qid=1240432085&sr=8-27)

it was really interesting. You should write your own book!!

What do you do for a living? Or what did you study in school?

I am not working right now and haven't for about a year. I studied psychology in school (surprise!) but only have about a year done and didn't go this semester because of health stuff. I don't know if I'd be capable of writing a book but maybe one day :) A good book that's very easy reading is http://www.amazon.com/Separated-Light-Path-Psychological-Trauma/dp/0976055406/ref=sr_1_1?ie=UTF8&s=books&qid=1240432686&sr=1-1 He runs a treatment center for PTSD in FL and is a really great guy and has helped me tons. The book is half narrative and half a scientific (but easily understood) look at DID, and his method of recovery from it. He also has DID and is a great therapist and all around a great guy, a good example of how someone with DID can be very successful after treatment.

I haven't been working on my music much lately, been really depressed and losing a shitload of time - especially this month is bad historically with lots of flashbacks and stuff. Music is definitely where my heart is, but it's just not happening lately. I found some old recordings from when I was like 12/13 not too long ago which are interesting. I started writing/playing at 11, of course stopped for a while out of force, but picked it right back up at 19.

waltermcphilp
04-22-2009, 03:39 PM
http://i92.photobucket.com/albums/l23/dazzlejunction/greetings/hugs/hug_7.gif

bardy
04-22-2009, 08:23 PM
what instrument do you play?

reprise85
04-23-2009, 03:00 PM
guitar

Nimrod's Son
04-23-2009, 03:48 PM
I think the chest thing is just inherited but yeah it makes you gain weight and makes it almost IMPOSSIBLE to lose. It also makes you incredibly tired and does bad things to your skin and bowels. It also diminishes sex drive.

wow, your boyfriend should dump you right away. poor bastard.

Nimrod's Son
04-23-2009, 03:55 PM
Yep, and here's where I regret being honest about anything on this board.

It's barden trolling. Ignore him, he's a fucktard.

Nimrod's Son
04-23-2009, 04:02 PM
Also I am fascinated by Erica's story.

Do you date at all? I know that besides the DID it might be difficult because of the whole LA experience, but I'm curious if you do, and how the guy could keep you and your alters straight. Or also, do any of your alters date?

PS I am not asking you out on a date.

pale_princess
04-23-2009, 04:27 PM
thanks for sharing your story reprise85.

only disease i have is hpv. *shrug*

threetwooneZERO
04-23-2009, 04:29 PM
I have a weird disease on my feet, I get called "the hobbit" a lot.

http://farm1.static.flickr.com/187/372359700_a82ab83191.jpg?v=0

cardiac
04-23-2009, 04:44 PM
I have a weird disease on my feet, I get called "the hobbit" a lot.

There's a joke to be made about the action performed in your avatar and the fur-like hair in your body.

I'm also quite curious of Reprise85's condition. Do you tend to explain your condition to people you end up having a longer conversation with in case you "switch" midway (a bit like the guy from Memento)?

My apologies if you'd prefer if people didn't bug you about it, I'm merely curious.

myosis
04-23-2009, 06:02 PM
regarding my TMJ disorder, i got the test results today from a dentist who supposedly treats this and she laid down an orthodontic treatment plan worth 12,500$. with braces and all. and not the transparent kind cause they don't use those.

i think the worst part is that after 15 minutes she had to leave me with her assistant/secretary to explain the rest cause she was too busy. how am i supposed to openly discuss this? fuck her, i'm going to see an osteopath.

reprise85
04-24-2009, 03:45 PM
Also I am fascinated by Erica's story.

Do you date at all? I know that besides the DID it might be difficult because of the whole LA experience, but I'm curious if you do, and how the guy could keep you and your alters straight. Or also, do any of your alters date?

PS I am not asking you out on a date.

I've been on a handful of dates in recent years but not many... I'm not the one who goes on dates really, but sometimes I am co-conscious when it happens. The whole system of alters was original designed (instinctively) to not be obvious to others. So I may have one alter who just dates, does intimacy, etc. The person wouldn't necessarily even know anyone but the "dating alter", and wouldn't perceive anything at all being abnormal. I've never gone on a date without knowing the person somewhat first though, so they've all kinda know. It's always too much for them, I haven't had anything serious, well, ever.

The whole system starts breaking down at some point, and that's what happened to me about a year ago, and I started noticing something was wrong. It's hard for other people to know about them when I was going to work as one, home as one, friend to this person as one, etc. And most of them know to answer to "Erica", even if that isn't their name. It happens to people when they have kids or certain other life altering events... for me it coincided with wanting to get clean from drugs. Then everyone started realizing, when I was just switching constantly, I started really noticing the things that were out of place, that my "spacing out" at work wasn't a normal thing to everyone else, stuff like that. Also other symptoms increased, like flashbacks and insomnia.

Before that I didn't really know anything was wrong, or more accurately I didn't want to know about it, and if I started thinking about anything related, I'd just switch. My therapist told me several times, according to her, that I had DID, but I would never remember her telling me. Eventually she brought it up in a round about way, knowing I would curiously look it up for more info, and I realized right then that's what it was... after a couple of months of kind of denying it to myself and her, I just sort of accepted it, because it's very, very obvious.

reprise85
04-24-2009, 03:53 PM
There's a joke to be made about the action performed in your avatar and the fur-like hair in your body.

I'm also quite curious of Reprise85's condition. Do you tend to explain your condition to people you end up having a longer conversation with in case you "switch" midway (a bit like the guy from Memento)?

My apologies if you'd prefer if people didn't bug you about it, I'm merely curious.

It's all cool. Usually I will tell somebody if they mention something weird to me, as in they saw me switch but didn't know what they saw. I'll also end up explaining it to anyone I engage with regularly, or at least several times, because otherwise it's hard to explain being jobless and not going to school or really doing anything. It's only for hopefully just a little while longer, but I'd rather they have some kind of idea of why and not just think I'm a huge loser. I don't mention it right out if they ask what I do for a living, but if they start asking me what I do throughout the day, it's a better to tell the truth than make up some shit or tell them I did nothing because I don't remember.
The other scenario is that they met me as an alter, and then I meet them again and they're like "WTF, I've met you before and I thought your name was _____"
At that point, if I care at all about them or will see them again, I'll tell them. Otherwise I'll just say something like, oh I forgot or whatever. It's tough to make a call, it's really personal but at the same time it could really frighten someone if I keep switching or switch into a child alter or any other number of things. Also I don't feel like getting baker acted by a cop that doesn't know about it, if someone calls cause they don't know what's going on. That's never happened but it's something I worry about. :embarass:

reprise85
04-24-2009, 03:56 PM
thanks for sharing your story reprise85.

only disease i have is hpv. *shrug*

welcome. does your hpv effect your life day-to-day?

I have a weird disease on my feet, I get called "the hobbit" a lot.

http://farm1.static.flickr.com/187/372359700_a82ab83191.jpg?v=0

Wow, I've never seen that before. Do you know what it's called, or do you actually have a disease or just some kind of slight birth abnormality? What do people think when you show them your feet?

The Jesus
04-24-2009, 05:38 PM
regarding my TMJ disorder, i got the test results today from a dentist who supposedly treats this and she laid down an orthodontic treatment plan worth 12,500$. with braces and all. and not the transparent kind cause they don't use those.

i think the worst part is that after 15 minutes she had to leave me with her assistant/secretary to explain the rest cause she was too busy.


Did you have to pay for this 15 minute consultation?

ohnoitsbonnie
04-24-2009, 06:10 PM
Wow, I've never seen that before. Do you know what it's called, or do you actually have a disease or just some kind of slight birth abnormality? What do people think when you show them your feet?
lol

ohnoitsbonnie
04-24-2009, 06:16 PM
Were you being a different personality here? http://forums.netphoria.org/3459302-post13.html

myosis
04-24-2009, 07:43 PM
Did you have to pay for this 15 minute consultation?
it was included in the 250$ appointment for tests... which i may get covered by insurance but i am still not sure.

still... i have a bunch of questions that i did not get a chance to discuss with the actual doctor. and i got no advice on how to take care of myself, and no real explanation as to what could have caused the constriction of my maxillary molars.

correcting malocclusion is all nice but something has caused it and this is what i want to attack first.

pale_princess
04-24-2009, 07:51 PM
welcome. does your hpv effect your life day-to-day?


nah not really. it's just kinda embarrassing except i guess it's pretty common.

Eulogy
04-24-2009, 08:22 PM
uh, i call bullshit on 3210

beef curtains
04-24-2009, 09:11 PM
I can't believe I'm sharing this but I had a molar pregnancy last fall/winter. It sucked

ohnoitsbonnie
04-24-2009, 09:31 PM
del

barden
04-24-2009, 09:40 PM
I can't believe I'm sharing this but I had a molar pregnancy last fall/winter. It sucked

is that when you have a twin but it develops inside you like a mutant and then you just give birth to teeth?

hnibos
04-24-2009, 09:43 PM
uh, i call bullshit on 3210

lol obviously

...


.......

..

obscured01
04-25-2009, 10:19 AM
http://forums.netphoria.org/general-chat-archive/131819-hey-guys-i-just-got-back-surgery.html

<font color="dab9ea">I'm going back in two weeks for a biopsy to see if I have another tumor in the same area. </font>